Practical support
Help with equipment, mobility and sensory aids, therapy items and other essentials that make daily life easier.
Rare doesn’t mean alone
Support for children living with rare diseases
A rare disease diagnosis can change a family’s world overnight. We provide fast, practical support to children and families across the UK—when they need it most.
How we help
Real support, without unnecessary barriers
From practical equipment to a much-needed family experience, support is shaped around each child’s circumstances.
Fast decisions
A simple, compassionate process designed to get help to families quickly when timing matters.
Moments that matter
Family days out, memory-making and wellbeing support that give children something positive to look forward to.
Who can apply
Clear criteria. Human decisions.
- Child is under 18
- Lives in the UK
- Has a confirmed rare disease
- Supporting consultant letter available
Why we exist
Families shouldn’t have to wait for understanding.
Here & Now was created from lived experience of childhood rare disease. We know how quickly everyday life can change—and how powerful timely, thoughtful support can be.