Get involved

Help us be there when families need us

Your support helps children living with rare diseases access practical help, inclusion and moments that matter.

Choose a challenge, organise an event or bring your community together to raise funds and awareness.

Businesses, clubs and community groups can support a campaign, sponsor an activity or make us their charity partner.

Online giving is being prepared. Contact us if you would like to make a donation or discuss regular support.

Have an idea?

Tell us what you would like to do and we’ll help you take the next step.