Equipment and practical items
Mobility and sensory aids, therapy items and other equipment that improves independence, comfort, safety or participation.
How we help
Support shaped around each child
Every family’s needs are different. We consider requests that can make a clear, positive difference to a child living with a rare disease.
Travel and access
Help connected to essential appointments, specialist care or activities when rare disease creates additional barriers for the family.
Family days and memory-making
Experiences that bring a family together, create happy memories and give a child something special to look forward to.
Wellbeing support
Practical wellbeing items and clinician-recommended supplements where they form part of the child’s support needs.
Support is considered individually and depends on available charitable funds. We may ask for further information so trustees can make a fair decision.
Check eligibility and apply