Apply for support
Family support
Our first pilot is for families living in Scotland. We hope to offer support across the UK later, subject to funding and trustee approval.
Your child may be eligible if:
They are under 18
They live in Scotland for this pilot
They have a confirmed rare disease
You can provide professional evidence confirming the diagnosis
What you can request
A day out, a practical item or another form of support may be considered. Decisions depend on eligibility, available funds and trustee approval.
What happens next
After your enquiry, we will explain the full application and evidence process. We aim to communicate a decision within five working days once we have all the information needed to assess a request. This is an aim, not a guarantee; an initial enquiry does not start that decision period.
Do not order items or incur costs expecting reimbursement before receiving written approval. Read our grant application terms for the full pilot rules.
Send an enquiry online
Complete this short form to tell us how to contact you and what kind of support you are interested in. It is the first step, not a completed grant application. We will explain the full application and how to provide diagnosis evidence securely.
Please do not put your child’s name, diagnosis or medical documents in this form. Do not send medical records by ordinary email.
Before submitting, read our family enquiry privacy notice. It explains which details we collect, who sees them and how long we keep them.
If the form does not display on your device, open it in a new window. Please read our privacy notice before submitting there too.